For each new morning with its light,
For rest and shelter of the night,
For health and food, for love and friends,
For everything Thy goodness sends.
~Ralph Waldo Emerson~
We recently had the Honor of being a voice for families affected by California's budget cuts in Special Education and Child Development Programs. For those who have followed us through our journey of parenting a preemie born 3 months early with medical challenges, we thank you from the bottom of our hearts for sharing the many incredible joys with us. And for those who'd love to learn more about our Miracle Mia can do so from the following posts:
Miracle of Life Story - How We Came To Be Believe Achieve Hugo and Roxanne
Miracle Mia's American Idol Story
Miracle Mia's American Idol Story
Our family was interviewed by local News station, ABC30, at Exceptional Parents Unlimited (EPU). This is where Miracle Mia receives Speech therapy, Occupational therapy and sees an Early Intervention Specialist. It's programs and centers, such as EPU, that give each child a healthy start. It's a special place where children with disabilities and their families can find support, services and gain a wealth of knowledge.
Our Miracle Mia was born with many medical challenges. Because of being "medically fragile," it delayed her from reaching developmental milestones such as sitting up, walking and even eating. If we didn't have the guidance of the teachers at EPU, it would have been more challenging for Hugo and I to help our daughter in the best way possible. We opted out on skilled nursing services, because we felt what Mia needed most was the unconditional loving care of her parents.
We soon transformed ourselves to being her around the clock nurses. But we still needed a resource to learn how to best help our Mia reach crucial developmental milestones. It was EPU and it's teachers who helped us along our journey to give Mia the healthy start she deserved.
We are ever so Thankful for all we have learned and Miracle Mia is living proof of how crucial programs such as EPU are for families with children of special needs. We find it a blessing to have been asked to be a face and an important voice for families who face losing these important resources.
We are ever so Thankful for all we have learned and Miracle Mia is living proof of how crucial programs such as EPU are for families with children of special needs. We find it a blessing to have been asked to be a face and an important voice for families who face losing these important resources.
What needs to be realized is: WE are more than just numbers and names on a piece a paper. WE are Families. WE are Parents. THEY are our Children. And WE are the people who devote every day in giving the best to them. Why make cuts on our Future?
We Believe the children ARE the future.
"The test of the morality of a society is what it does for its children."
~Dietrich Bonhoeffer
It would be a honor to have you view the short segment on the importance of early intervention services and to see our happy family during one of Mia's sessions. The segment aired last Sunday and ABC30's website has not yet been updated with recent video. But you can still view text highlights of the show and a cute picture of our Miracle Mia playing with friends at EPU. Click Here! We'll post any footage here as soon as possible! We've requested a copy of the special. :-)
Thank you all from the bottom of our hearts.
Many Blessings....
Roxanne and Hugo
I have been "friends" with you on fb and following you on blogger for a few months (at least) and this is the first time I feel like I'm reading anything personal.
ReplyDeleteThank you for sharing!
I found out a couple of weeks ago that my newborn has DS. It is good to see that you are fighting the budget cuts in CA. I don't live there anymore, but knowing that you're an advocate for your child is heartwarming.
I hope I get to learn more about you and your family in the future.
God Bless. :-)
Hi Hugo and Roxanne,
ReplyDeleteI love the quote and I hope the health condition of your Mia is better from time to time.
Arswino
It is good that people are speaking out about these things. Maybe they should cut things the money that goes for the seals instead of the medical needs of families like yours.
ReplyDeleteHope that it all works out for you. Have a great day.
Dan and Deanna "Marketing Unscrambled"
Hello Amy,
ReplyDeleteWe would love for our family to get to know yours, too. Parenting a child with special needs is an incredible experience. We wouldn't take any moment back. It's made us the people we are today. We want to use what we've learned through our journey to help other parents and children. If you ever need anyone to talk to about your baby's diagnosis, please don't hesitate to contact us via email. We'd love to chat and be there for you.
Thank you so much for being a part of the Believe Achieve "family." Talk to you soon.
Many Blessings....
Roxanne and Hugo
Believe Achieve
Hi Arswino,
ReplyDeleteThank you so much for your concern and being there for us. Mia is doing incredibly well! We still have a few more challenges to overcome, but it's nothing we, as a family, can't handle! :-) We'll be sure to share Mia's many accomplishments in future posts.
Many Blessings....
Roxanne and Hugo
Believe Achieve
Hi Dan and Deanna,
ReplyDeleteThank you so much for all your support and love through our journey.
We're working on plans to raise more awareness about these special education programs that are crucial for high-risk infants (preemies). Most people are not aware of how crucial schools, such as EPU, are unless they have some personal experience or family members with disabilities.
It's truly wonderful to have supporters like the two of you. We're so grateful.
Many Blessings....
Roxanne and Hugo
Believe Achieve
Hello Hugo and Roxanne,
ReplyDeleteThis is an important area. Good luck with getting it taken care of for the benefit of all that need it.
This is a blog that you would enjoy. They are not special need children. She does have 5 children under the age of 5. Twin girls 4 years old. Triplet boys that I think just turned 2. What a blessing, but what a hand full. Check it out at: http://vivafullhouse.blogspot.com/
You will like what she has to offer.
Dan and Deanna "Marketing Unscrambled"
Hi Roxanne and Hugo .. it's good to hear a little more of your story - and I'm lucky as I've had the privelege of meeting you all - and can only wish you all the absolute best along your road. Mia has the most wonderful parents .. and with the background support - may you be able to progress to bring her to the best health and maximum development possible.
ReplyDeletewith love and many thoughts
Hilary Melton-Butcher
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